Causes of and alternatives to medication for behaviours that challenge in people with intellectual disabilities: direct care providers' perspectives

Deb, Shoumitro (Shoumi) ORCID: https://orcid.org/0000-0002-1300-8103, Limbu, Bharati ORCID: https://orcid.org/0000-0002-3532-0640, Unwin, Gemma L. ORCID: https://orcid.org/0000-0002-5205-3150 and Weaver, Tim ORCID: https://orcid.org/0000-0002-3437-3556 (2022) Causes of and alternatives to medication for behaviours that challenge in people with intellectual disabilities: direct care providers' perspectives. International Journal of Environmental Research and Public Health (IJERPH), 19 (16) , e9988. pp. 1-14. ISSN 1661-7827 [Article] (doi:10.3390/ijerph19169988)

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Abstract

Behaviours that challenge (BtC), such as aggression and self-injury, are manifested by many people with intellectual disabilities (ID). National and international guidelines recommend non-pharmacological psychosocial intervention before considering medication to address BtC. Support staff play a pivotal role in the prescription process. Using coproduction, we developed a training programme for support staff, called SPECTROM, to give them knowledge and empower them to question inappropriate prescriptions and ask for the discontinuation of medication if appropriate and instead look for ways to help people with ID when they are distressed without relying on medication. We have presented data from two focus groups that we conducted during the development of SPECTROM: one that included support staff, and another that had service managers and trainers. In these focus groups, we explored participants’ views on the use of medication to address BtC with a particular emphasis on the causes of and alternatives to medication for BtC. Along with the participants’ views, we have also presented how we have addressed these issues in the SPECTROM resources.

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