Biopsychosocial implications of living with multiple sclerosis: a qualitative study using interpretative phenomenological analysis

Kassie, Seada A. ORCID: https://orcid.org/0000-0001-6546-6168, Alia, Jannat and Hyland, Lynda ORCID: https://orcid.org/0000-0001-5813-6400 (2021) Biopsychosocial implications of living with multiple sclerosis: a qualitative study using interpretative phenomenological analysis. BMJ Open, 11 (8) , e049041. pp. 1-10. ISSN 2044-6055 [Article] (doi:10.1136/bmjopen-2021-049041)

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Abstract

Background: Multiple sclerosis (MS) is estimated to affect 2.8 million people worldwide, with increasing prevalence in all world regions (Walton et al). While there is no cure for MS, medication and lifestyle modifications can slow disease progression and enhance patients’ quality of life. The biopsychosocial model of health recognises important interactions among biological, psychological and social factors in illness, including those relating to illness management, which contribute to the experience of those diagnosed with MS. Objective: This qualitative, idiographic study aimed to explore the lived experiences of patients in the United Arab Emirates (UAE) diagnosed with S. Methods: Semistructured interviews were conducted with a purposive sample of eight patients with MS ranging in age from 25 to 56 years. All participants were residing in the UAE at the time of data collection. Interpretative phenomenological analysis was used to analyse the data. Results: Three superordinate themes were identified from patients’ candid accounts of their lives with MS, highlighting issues of illness management, acceptance and gratitude, and adaptive coping. These themes broadly illustrate biological, psychological and social aspects of patients’ MS experiences. Conclusion: The study emphasised the importance of adopting the biopsychosocial model to treat and manage MS. Additionally, it highlights the need for routine assessment and early, multidimensional approach with multidisciplinary team efforts to improve patients’ quality of life.

Item Type: Article
Keywords (uncontrolled): Neurology, 1506, 1713, multiple sclerosis, qualitative research, health services administration & management, neurology, psychiatry
Research Areas: A. > School of Science and Technology > Psychology
Item ID: 33745
Notes on copyright: © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/
This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
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Depositing User: Jisc Publications Router
Date Deposited: 20 Aug 2021 11:05
Last Modified: 21 Sep 2021 14:53
URI: https://eprints.mdx.ac.uk/id/eprint/33745

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