‘Dignity and respect’: An example of service user leadership and co‐production in mental health research

Faulkner, Alison ORCID: https://orcid.org/0000-0003-3308-3925, Carr, Sarah ORCID: https://orcid.org/0000-0002-5301-9456, Gould, Dorothy, Khisa, Christine, Hafford-Letchfield, Trish ORCID: https://orcid.org/0000-0003-0105-0678, Cohen, Rachel, Megele, Claudia and Holley, Jessica (2021) ‘Dignity and respect’: An example of service user leadership and co‐production in mental health research. Health Expectations, 24 (S1) . pp. 10-19. ISSN 1369-6513 [Article] (doi:10.1111/hex.12963)

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This paper explores the methodological aspects of a user‐led study investigating mental health service user experiences of targeted violence and abuse (often called 'hate crime'). 'Keeping Control' was a 16‐month qualitative study, undertaken in the context of adult safeguarding reforms in England. By collecting data on service user concepts and experiences, the research sought to address a gap in research and practice knowledge relating to targeted violence, abuse and hostility against people with mental health problems. In this paper, we discuss the significance of the design and methodology used for this study, with a particular focus on the interviews with service users. The research was both user‐led and carried out in collaboration with practitioners and academics, a form of research co‐production. Our aim is to inform researchers, practitioners and policymakers about the value of user leadership in co‐productive research with practitioners, particularly for a highly sensitive and potentially distressing topic.

Item Type: Article
Additional Information: Special Issue Paper
Keywords (uncontrolled): Public Health, Environmental and Occupational Health
Research Areas: A. > School of Health and Education > Mental Health, Social Work and Interprofessional Learning
Item ID: 27743
Notes on copyright: This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. © 2019 The Authors Health Expectations published by John Wiley & Sons Ltd
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Depositing User: Jisc Publications Router
Date Deposited: 07 Oct 2019 09:06
Last Modified: 23 Nov 2021 01:56
URI: https://eprints.mdx.ac.uk/id/eprint/27743

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