Experiences of mothers of extremely preterm infants after hospital discharge

Granero-Molina, José, Fernández Medina, Isabel María, Fernández-Sola, Cayetano, Hernández-Padilla, José Manuel ORCID logoORCID: https://orcid.org/0000-0002-5032-9440, Jiménez Lasserrotte, María Del Mar and López Rodríguez, María Del Mar (2019) Experiences of mothers of extremely preterm infants after hospital discharge. Journal of Pediatric Nursing, 45 . E2-E8. ISSN 0882-5963 [Article] (doi:10.1016/j.pedn.2018.12.003)

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The purpose of this study was to describe and understand the experiences of mothers of extremely preterm infants during the first twelve months at home following discharge from a neonatal intensive care unit. A qualitative, interpretative approach using Gadamer's philosophical hermeneutics was carried out. One focus group and fifteen in-depth, semi-structured interviews were conducted twelve months after hospital discharge. Responses were recorded, transcribed and analyzed using computer-assisted qualitative data analysis. The study´s participants were twenty women. The following themes emerged from the data analysis: 1) 'The journey home: the discharge process', which included the sub-themes 'escaping the hospital environment: between desire and fear' and 'preparing parents for hospital discharge: practice and formal support'; and 2) 'The difficulty of living with an extremely preterm infant', including the sub-themes 'the challenge of an unexpected form of childcare', 'overprotection of and bond with a child with special needs' and 'disturbance in the social/familiar setting: when a mother becomes a nurse'. The process of hospital discharge and the first months at home are difficult. The birth and care of an extremely preterm infant affect the mothers' quality of life as well as their family and social life. Practice and early discharge programmes can make the discharge process easier. The knowledge and understanding of the experience of mothers of extremely preterm infants in the first months at home after hospital discharge could help healthcare professionals to develop educational strategies and counselling interventions in accordance with the mothers' needs. [Abstract copyright: Copyright © 2018 Elsevier Inc. All rights reserved.]

Item Type: Article
Keywords (uncontrolled): Discharge, Extremely preterm infant, Mothers' experience, Neonatal intensive care unit, Qualitative research
Research Areas: A. > School of Health and Education > Adult, Child and Midwifery
Item ID: 25964
Notes on copyright: © 2018. This manuscript version is made available under the CC-BY-NC-ND 4.0 license https://creativecommons.org/licenses/by-nc-nd/4.0/
Useful Links:
Depositing User: Jisc Publications Router
Date Deposited: 09 Jan 2019 14:33
Last Modified: 29 Nov 2022 19:14
URI: https://eprints.mdx.ac.uk/id/eprint/25964

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