The diagnosis of hereditary angioedema: family caregivers’ experiences

Granero-Molina, José, Sánchez-Hernández, Francisco, Fernández-Sola, Cayetano, Jiménez-Lasserrotte, María del Mar, Antequera-Raynal, Laura Helena and Hernández-Padilla, José Manuel ORCID logoORCID: (2020) The diagnosis of hereditary angioedema: family caregivers’ experiences. Clinical Nursing Research, 29 (2) . pp. 117-126. ISSN 1054-7738 [Article] (doi:10.1177/1054773818780102)

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The aim of this study was to understand the experiences of family caregivers in the process of diagnosing hereditary angioedema. An interpretive and qualitative research methodology based on Gadamer’s philosophical hermeneutics was carried out. Data collection took place between May 2015 and August 2016 and included a focus group and in-depth interviews with 16 family caregivers. Two themes define the experiences of family caregivers: “Family life focuses on identifying the problem” and “Discovering and coping with a complex diagnosis.” The process of diagnosis generates fear, anxiety, uncertainty, and incomprehension. Family caregivers are the main support for patients diagnosed with hereditary angioedema. As they share in the patients’ suffering, they need a diagnosis to be established to be able to cope with the disease and offer support. Family health nurses can contribute to improving the coping process in this phase of the disease.

Item Type: Article
Research Areas: A. > School of Health and Education > Adult, Child and Midwifery
Item ID: 24358
Notes on copyright: José Granero-Molina, RN, PhD, Francisco Sánchez-Hernández, RN, MSc, Cayetano Fernández-Sola, RN, PhD, María del Mar Jiménez-Lasserrotte, RN, PhD, Laura Helena Antequera-Raynal, RN, MSc, and José Manuel Hernández-Padilla, RN, PhD, The Diagnosis of Hereditary Angioedema: Family Caregivers’ Experiences, Clinical Nursing Research. 2020;29(2):117-126. Copyright © 2018 The Author(s). Reprinted by permission of SAGE Publications.
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Depositing User: Jose Hernandez-Padilla
Date Deposited: 12 Jun 2018 10:17
Last Modified: 24 Feb 2023 12:01

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