School ethos and variation in health experience of young people with sickle cell disorder at school

Dyson, Sue E., Atkin, Karl, Culley, Lorraine, Demaine, Jack and Dyson, Simon Martin (2012) School ethos and variation in health experience of young people with sickle cell disorder at school. Diversity and Equality in Health and Care, 9 (1) . pp. 33-44. ISSN 2049-5471 [Article]

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Abstract

Young people with serious chronic illnesses, such as sickle cell disorder, report high levels of negative experiences at school that have adverse effects on their health. Disclosure of sickle cell status appears to be unrelated to improved experiences, and alternative explanations for variable health experiences at school are required. This paper draws on a multi-methods study of young people with sickle cell disorder in England in an attempt to make sense of variable experiences unrelated to disease severity or to teacher/peer awareness of sickle cell disorder.
School ethos refers to the manner in which school-based interactions combine to bring into effect school values, including the attitudes expected of young people, the attitudes expected of teachers, how young people relate to each other, how young people relate to staff, how the school relates to the community, and a holistic concern with the spiritual, moral, cultural and social development of the young person. It is proposed that these interactions and resulting values are a key to understanding the variable health experiences of young people with sickle cell disorder at school.

Item Type: Article
Research Areas: A. > School of Health and Education > Adult, Child and Midwifery
Item ID: 12646
Depositing User: Sue Dyson
Date Deposited: 10 Dec 2013 05:36
Last Modified: 13 Sep 2022 12:03
URI: https://eprints.mdx.ac.uk/id/eprint/12646

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