Have digital resources taken a wrong turn on the health ‘information journey’?

Adams, Anne, Attfield, Simon ORCID logoORCID: https://orcid.org/0000-0001-9374-2481 and Blandford, Ann (2004) Have digital resources taken a wrong turn on the health ‘information journey’? In: Proceedings of the 2nd healthcare digital libraries workshop. ECDL. . [Book Section]


This paper discusses the health information needs and drivers of UK patients in terms of a health ‘information journey’. This
journey is identified from the experiences of both NHS Direct,
who provide information services, and patients themselves. 22
in-depth interviews were conducted with patients and information providers at NHS Direct. The findings identify a health ‘information journey’ for the patient from ‘initiating information requirements’ to the ‘facilitation of that information’ and the need for ‘contextualized information interpretation’ and mediation. We also discuss how NHS Direct uses information resources to support patients’ needs by specifying elements of the information journey they do and do not support, and how those needs are supported by other professionals. The study has shown that patients are often confused about how various resources fit into their journey (e.g. can doctors facilitate information retrieval, will they provide barriers to its interpretation). The findings of this paper support health digital library designers in their development of appropriate systems and support for those systems.

Item Type: Book Section
Additional Information: Paper presented at ECDL 2004 workshop on Healthcare Digital Libraries
Keywords (uncontrolled): Health informatics; patient information; digital resources; grounded theory; mediation; information needs
Research Areas: A. > School of Science and Technology > Computer Science
Item ID: 11816
Useful Links:
Depositing User: Shrikant Chavan
Date Deposited: 29 Aug 2013 07:22
Last Modified: 13 Oct 2016 14:28
URI: https://eprints.mdx.ac.uk/id/eprint/11816

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