Compiling medical data into national medical databases: legitimate practice or data protection concern?

Berčič, Boštjan and George, Carlisle (2008) Compiling medical data into national medical databases: legitimate practice or data protection concern? In: Ethical, legal and social issues in medical informatics. Duquenoy, Penny and George, Carlisle and Kimppa, Kai, eds. Medical Information Science Reference, Hershey, PA., pp. 228-247. ISBN 9781599047805

Full text is not in this repository.

Abstract

In recent years, various national medical databases have been set up in the EU from disparate local databases and file systems. Medical records contain personal data and are as such protected by EU and member states' legislation. Medical data, in addition to being personal data, is also defined in the EU legislation as being especially sensitive and warrants special connection with these processes. Such issues relate to the merits of compiling a nationwide database, deciding on who has access to such a database, legitimate uses of medical data held, protection of medical data, and subject access rights amongst others. This paper examines some of these issues and argues that such databases are inevitable due to technological change; however there are major legal and information security caveats that have to be addressed. Many of these caveats have not yet been resolved satisfactorily, hence making medical databases that already exist problematic.

Item Type:Book Section
Research Areas:School of Science and Technology > Science & Technology
ID Code:5150
Useful Links:
Deposited On:30 Apr 2010 11:54
Last Modified:14 Oct 2013 09:19

Repository staff only: item control page

Full text downloads (NB count will be zero if no full text documents are attached to the record)

Downloads per month over the past year