Patient experience of dialysis refusal or withdrawal - a review of the literature.

Noble, Helen and Meyer, Julienne and Bridges, Jackie and Kelly, Daniel and Johnson, Barbara (2008) Patient experience of dialysis refusal or withdrawal - a review of the literature. Journal of Renal Care, 34 (2). pp. 94-100. ISSN 1755-6678

Full text is not in this repository.

Abstract

Aim. The aim of this literature review was to advance understanding of dialysis refusal and withdrawal in relation to the experiences of patients and carers and to explore the trajectory to death of those abating dialysis. Method. Databases searched included CINAHL, Medline, PsycINFO, British Nursing Index, International Bibliography of the Social Sciences, ASSIA and Cancerlit. Forty-four quantitative papers and two qualitative papers were identified. Findings. The patient and carer experience is rarely explored in the literature but issues related to 'Making decisions to withhold/forego or withdraw treatment', 'Length of survival without dialysis', Prevalence of symptoms in end-stage renal disease', 'The utilisation of Advance Directives' and 'The impact on families' throw some light on the phenomena of dialysis refusal and withdrawal. Conclusions. Little is known about those patients who withdraw from or decide not to commence dialysis. Empirical studies related to those who opt not to embark on dialysis are limited to four worldwide. There is an urgent need for further research to determine the experiences and needs of this population and a more patient-centred approach is required, consistent with modern palliative medicine.

Item Type:Article
Research Areas:School of Health and Education > Institute of Nursing and Midwifery
ID Code:3528
Useful Links:
Deposited On:31 Dec 2009 06:54
Last Modified:13 May 2014 13:22

Repository staff only: item control page

Full text downloads (NB count will be zero if no full text documents are attached to the record)

Downloads per month over the past year