Service support for families caring for a child with sickle cell disorders or thalassaemia

Atkin, Karl and Ahmad, Waqar I. U. and Anionwu, Elizabeth N. (1998) Service support for families caring for a child with sickle cell disorders or thalassaemia. Health, 2 (3). pp. 305-327. ISSN 1461-7196

Full text is not in this repository.

This item is available in the Library Catalogue

Abstract

Until recently, health care policy has largely ignored sickle cell disorders (SCDs) and thalassaemia. This is despite the difficulties faced by service users and their families: the consequences of which range from denial of informed choice to avoidable suffering and stress. This article, by presenting material from a qualitative evaluation of service support to families caring for a child with a sickle cell disorder or thalassaemia, examines these problems in detail. We specifically focus on the accounts of health professionals, their managers and health commissioners, to explore treatment and support for children with a haemoglobinopathy. We conclude that ill-coordinated and poorly resourced haemoglobinopathy services represent major problems for users and their families. However, we also highlight examples of good practice; demonstrating that improvements can be made with clear planning, employment of appropriate and well-trained staff, good inter-agency working and user involvement.

Item Type:Article
Research Areas:Law > Social Policy & Administration
ID Code:2745
Useful Links:
Deposited On:27 Aug 2009 13:40
Last Modified:28 Jan 2014 08:12

Repository Staff Only: item control page

Full text downloads (NB count will be zero if no full text documents are attached to the record)

Downloads per month over the past year