'Living a 'normal ' life: young people living with thalassaemia major or sickle cell disorder

Atkin, Karl and Ahmad, Waqar I. U. (2001) 'Living a 'normal ' life: young people living with thalassaemia major or sickle cell disorder. Social Science and Medicine, 53 (5). pp. 615-626. ISSN 0277-9536

[img]
Preview
PDF
139kB

Official URL: http://dx.doi.org/10.1016/S0277-9536(00)00364-6

This item is available in the Library Catalogue

Abstract

This qualitative paper explores the strategies and resources young people use to cope with sickle cell disorder or thalassaemia major, two haemoglobin disorders with serious implications for health and survival. By focusing on coping strategies, we explore how young people attempt to take control over their lives. The respondents, largely of South Asian and African Caribbean origin, aged between 10 and 19 years, valued maintaining a ‘normal’ life and struggled to achieve this normalcy. Strategies were employed to minimise difference from peers but these strategies remained vulnerable. Coping occurred in a dynamic space, involving negotiation and engagement with both personal and structural factors. Threats to normalcy did not always reside in the condition; life transitions, changes in social relationships and racist, disablist or sexist marginalisation also threatened coping strategies.

Item Type:Article
Research Areas:Law > Social Policy & Administration
ID Code:2737
Useful Links:
Deposited On:27 Aug 2009 07:51
Last Modified:28 Jan 2014 08:22

Repository Staff Only: item control page

Full text downloads (NB count will be zero if no full text documents are attached to the record)

Downloads per month over the past year