'Living a 'normal ' life: young people living with thalassaemia major or sickle cell disorder

Atkin, Karl and Ahmad, Waqar I. U. (2001) 'Living a 'normal ' life: young people living with thalassaemia major or sickle cell disorder. Social Science and Medicine, 53 (5). pp. 615-626. ISSN 0277-9536

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Abstract

This qualitative paper explores the strategies and resources young people use to cope with sickle cell disorder or thalassaemia major, two haemoglobin disorders with serious implications for health and survival. By focusing on coping strategies, we explore how young people attempt to take control over their lives. The respondents, largely of South Asian and African Caribbean origin, aged between 10 and 19 years, valued maintaining a ‘normal’ life and struggled to achieve this normalcy. Strategies were employed to minimise difference from peers but these strategies remained vulnerable. Coping occurred in a dynamic space, involving negotiation and engagement with both personal and structural factors. Threats to normalcy did not always reside in the condition; life transitions, changes in social relationships and racist, disablist or sexist marginalisation also threatened coping strategies.

Item Type: Article
Research Areas: A. > School of Law > Social Policy Research Centre
Item ID: 2737
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Depositing User: Users 36 not found.
Date Deposited: 27 Aug 2009 07:51
Last Modified: 30 Apr 2015 17:51
URI: http://eprints.mdx.ac.uk/id/eprint/2737

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