Data mining and biological sample exportation from South Africa: a new wave of bioexploitation under the guise of clinical care?

Staunton, Ciara and Moodley, Keymanthri (2016) Data mining and biological sample exportation from South Africa: a new wave of bioexploitation under the guise of clinical care? South African Medical Journal, 106 (2). p. 136. ISSN 0256-9574

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Abstract

Discovery Health, one of the leading healthcare funders in South Africa (SA), will offer genetic testing to its members for USD250 (approximately ZAR3 400) per test from 2016. On the surface, this appears to be innovative and futuristic. However, a deeper look at this announcement reveals considerable problems in the exportation of biological samples and data out of SA, and brings into sharp focus the lack of protection in place for potential donors. In return for a reduced-cost genetic test, which will nevertheless be billed to a member’s savings plan, data from the patient’s results and probably the sample itself Author: OK? will be sent to the USA for storage, research purposes and possible commercialisation, Author ‘commercial use’? with no further benefit for the patient. This development has demonstrated the need for more stringent protection of the movement of biological samples and data out of SA, particularly with reference to consenting procedures, material transfer agreements, and the export of biological data themselves.

Item Type: Article
Research Areas: A. > School of Law
Item ID: 23973
Notes on copyright: Copyright remains in the Author’s name. The work is licensed under a Creative Commons Attribution - Noncommercial Works License.
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Depositing User: Ciara Staunton
Date Deposited: 23 Mar 2018 12:29
Last Modified: 22 Aug 2019 12:14
URI: https://eprints.mdx.ac.uk/id/eprint/23973

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