School ethos and variation in health experience of young people with sickle cell disorder at school

Dyson, Sue E., Atkin, Karl, Culley, Lorraine, Demaine, Jack and Dyson, Simon Martin (2012) School ethos and variation in health experience of young people with sickle cell disorder at school. Diversity and Equality in Health and Care, 9 (1). pp. 33-44. ISSN 2049-5471

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Abstract

Young people with serious chronic illnesses, such as
sickle cell disorder, report high levels of negative
experiences at school that have adverse effects on
their health. Disclosure of sickle cell status appears
to be unrelated to improved experiences, and
alternative explanations for variable health experiences
at school are required. This paper draws on a
multi-methods study of young people with sickle
cell disorder in England in an attempt to make sense
of variable experiences unrelated to disease severity
or to teacher/peer awareness of sickle cell disorder.
School ethos refers to the manner in which schoolbased
interactions combine to bring into effect
school values, including the attitudes expected of
young people, the attitudes expected of teachers,
how young people relate to each other, how young
people relate to staff, how the school relates to the
community, and a holistic concern with the spiritual,
moral, cultural and social development of the
young person. It is proposed that these interactions
and resulting values are a key to understanding the
variable health experiences of young people with
sickle cell disorder at school.

Item Type: Article
Research Areas: A. > School of Health and Education > Adult, Child and Midwifery
Item ID: 12646
Depositing User: Sue Dyson
Date Deposited: 10 Dec 2013 05:36
Last Modified: 22 Apr 2019 09:35
URI: https://eprints.mdx.ac.uk/id/eprint/12646

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